<a href="/index.htm">About Us</a>
<a href="/page1.htm">Myotubular Myopathy</a>
<a href="/page2.htm">Fundraising</a>
<a href="/page3.htm">Sponsors</a>

<a href="/page5.htm">Make a Donation</a>

<a href="/page4.htm">Research</a>

 

 

 

 

 

Zak
Toni and Mike
Baby Archie
British 10K London Run
Joshua
 British 10K London Run
BabyIngo and Mum

 

 

 

Myotubular Myopathy - Finding Strength

 

 

 

 

 

 

 

 

 

 

 

A big thank you to
all our Sponsors!

Thanks to Stephanie for giving the Trust your invaluable professional expertise and for your personal support too.
Thank you so much to

Jim Riggott of http://www.jimpix.co.uk

for his kind and generous spirit and for giving us time and web expertise to make some stunning Myotubular Trust
ecards.
Do try one!

07813-200298 or 07885-309753

Hotel "Oude Abdij" Noordstraat 3
B-8647 Lo-Reninge Belgium
tel: 0032-(0)58 / 28.82.65 or info@oudeabdij.com

Thank you Anny Deman for your very generous donation and continued support for our charity in 2007!
<a href="mailto:contact@myotubulartrust.com">contact@myotubulartrust.com</a>
Thank you so very much Richard, Tracey and Mat at Nightingale Austen Designs, Leatherhead, Surrey, for giving us so much of your time, creative ideas, artwork and a much-admired logo.
Charity Hosting by Net Communications
A huge thank you to
Deborah and Simon Gurney, Ben and all the team at Net Communications for giving us lots of advice and free webspace!
Heartfelt thanks to Ian Hunter of Orion Partners, now a Trustee of the Myotubular Trust, for giving us time, help and wealth of experience in charity work.
Thanks to Anna and all the team of nurses at geneva health for your fabulous ongoing support!
You have been very generous - and we are very grateful for everything!
Our thanks to integrity hr consulting for your very generous donation.
Click to see some of his impressive work!
Thanks to Jason Hawkes, ariel photographer, for his generous contribution of images for our 2007 Charity Auction. You can see some of his fabulous pictures at www.jasonhawkes.com
Christie + Co Business Intelligence
Thank you to everyone at Christie + Co for some wonderful support and for an amazingly generous donation to our charity. We can't thank you enough.

 

Chalkdell Management Accountants Ltd

 

Jamie Rosling, thank you so very much for volunteering to become a Trustee and for giving us your time and expertise and for looking after our financial affairs so efficiently. We are eternally grateful to you.

Thank you so much Toni Abram for your huge and ongoing support - we really appreciate all you do and your hard efforts in helping to promote and support the Myotubular Trust with fundraising.

Our sincere thanks to Great War battlefield guide Jon Nicholls and all the "HAMSTEAD POLICE PALS" who very kindly and generously collected £575 for our charity on recent coach trips to Belgium. Multi-talented Jon also has a band Mixed Feelings , and has written a book 'Cheerful Sacrifice' The Battle of Arras 1917.

An enormous thank you to Steve at Angel TV for giving us the facilities to put together a film. And thanks to Siv for her skill and time.
International Poster Management
Thank you to the team at ipm for offering to help us fundraise in 2007!
Medicare First
A special thank you to Karl Chatterjee and colleagues at Medicare First for sponsoring our 2008 t-shirts, in memory of baby Archie!
Pennine Healthcare
A heartfelt thanks from us, all the European affected families, our researchers and clinicians goes to Liz Fothergill, Managing Director; Annette Dunne and Elaine Randall at Pennine Healthcare for kindly sponsoring and wholeheartedly supporting our Inaugural Family Conference for Myotubular Myopathy in September 2007.