Our thanks go to the staff, students and parents of Shipbourne Primary School who have kindly donated their retiring collection from the Year 6 leaver’s assembly to the Myotubular Trust. Teacher, Karen Hutton, told us, ‘I am a teacher at a tiny village school in Kent , we have only 56 children and 7 staff: a small school with a big heart. More

We would like to extend our thanks to Ian White who recently celebrated his 70th birthday. Ian, whose ten year old grandson, Joshua, has myotubular myopathy asked that friends and family make a donation to the Myotubular Trust instead of buying him presents. More

On Sunday 4th July, 11 year old Hannah cycled 45 miles along the Thames Towpath, in memory of her friend Tom, in order to raise research funds for the Trust. Hannah was disappointed that she wasn’t around to join her mum, Katie, for the 20 mile Thames Towpath walk in May and so took it upon herself to arrange her own event. More

240 guests attended the Hornsby House School Venetian Masked Ball that took place on Saturday 3rd July, sporting an array of masks from the exquisite to a gas mask! We would like to extend our heartfelt thanks to Angela Newman , Serita Sleep and the many other parents were involved in making the evening such a tremendous success and raising over £11,200 for the Trust. More

A huge thank you to Gamestec Leisure Limited for recycling their old handsets for the Trust. They have raised £358.50 in support of the Trust to date. This year, 92 old and faulty handsets were sent away for recycling and a value of £150 was received for them, which Gamestec made over to the Trust. More

Glen Dobson is an extraordinary man. Inspired by a friend's son, Reece, who has myotubular myopathy, Glen has challenged himself on two occasions now to raise funds to help find a treatment or cure for the condition. Having thrown himself out of a plane and completed his first parachute jump in support of the Trust in 2009, Glen Dobson has just returned from Africa following his latest achievement – climbing Mount Kilimanjaro! More

On 24 July, Marie Loughlin, her husband John and two of their friends, Derek O'Loughlin and Susan Fitzhenry are hosting a 5-a-side football tournament in memory of their sons Nathan, Sean and Alex. Marie and John are really looking forward to the event as this year marks the tenth birthday of their first born son, Nathan. More

Family and friends of fourteen month old ‘Wee Will’ have taken on the extraordinary task of collectively completing a 1000 mile challenge in order to raise research funds for the Myotubular Trust. The 1000 miles is made up of walking, running, cycling and Three Peaks challenges - and the team started the first leg of their challenge at the Myotubular Trust walk on 8th May. More

On Tuesday 11th May the Busby Flower Club held their annual Open Night in support of both the Myotubular Trust and the Motor Neurone Disease Association. Club member Margaret Hislop, whose fourteen month old great-nephew, Will, has myotubular myopathy, nominated the Trust and was absolutely delighted when it was selected. More

We are delighted to announce that Myotubular Trust wristbands are now available to purchase in either adult or child sizes. For details on how to place an order, please visit the Myotubular Trust shop to order them. More

We would like to thank Linda Calderon for so kindly supporting the Trust by asking her friends and relatives to make donations when she celebrated her 30th birthday earlier last month. More

We would like to extend our heartfelt thanks to Karl Chatterjee, Andrew Yetzes, Robert Beaman and Sam Blake of Medicare First for their continued sponsorship of our 10K event t-shirts, which has so kindly been given in memory of Karl’s friend’s son, Archie and for the third year running. More

Gus Carroll is entering not one, but two sporting events for the Myotubular Trust this year. He has been training hard for his first ever triathlon event, the Dorney Lake Evening Triathlon, which takes place on May 12th. And following that, Gus will be joining us on 11th July, at the British London 10K, for the fourth time. More

Thanks again to 'We Love Northcote Road' for supporting the Trust at the Christmas lights celebrations which took place on 3rd December. Local schools, businesses and shops once again came out in force bringing the Northcote Road community close together while raising funds for our charity. More

When bride-to-be, Charlotte, set out for her hen night she had no idea what her friends had in store for her. Fellow 'hen', Samantha Hartup, made a very special top for her friend Charlotte to wear - it was adorned with polo mints and for a donation of £1 males were invited to bite a polo off of the top whilst Charlotte was still in it!. More

On Sunday 21 st March, Marek Pruszewicz is taking part in the Reading Half Marathon in support of the Myotubular Trust. This will be Marek’s tenth appearance in this event however, for many years, Marek has run in support of another very worthy cause close to his heart and we are very grateful to him for choosing to run for the Trust instead this year. More

We would like to thank James Lee for so kindly taking the time to nominate the Myotubular Trust for a Lloyd’s Market Charity Award in 2009. The nomination resulted in an award of £1,000 being made to the Trust. More

We have been really moved by the people who have chosen to foresake presents this year when celebrating their special occasions, and instead ask for donations to our charity. Our heartfelt thanks go to Christine Anderson, Mona Beck, Richard Nightingale, Brenda Seville and Carol Seville who all celebrated very significant milestone birthdays in 2009. Thank you too to Mr & Mrs Grover who collected donations when they celebrated their Golden Wedding Anniversary earlier in the year. Our belated congratulations to each and every one of you, and we really appreciate the kind generosity of your friends and family too.

Why not take the pressure out of Christmas this year, and shop at some major High Street stores from the comfort of your home? By doing so you can raise money for research into the Myotubular Myopathies at buy.at. This clever online shopping facility has already raised a staggering £685.75 for research to find a cure or treatment for myotubular myopathy, and has the potential to raise so much more if we can all get into the habit of shopping this way! More

Brave Glen Dobson undertook the challenge of completing his first parachute jump in support of the Trust. Glen was inspired to raise research funds by his friend’s son, Reece, who has myotubular myopathy. Glen says "It was my first jump, which was filmed from start to finish. The whole event was made worthwhile just to see Reece's reaction when I mentioned his name during the filmed interview at the start". More

On Sunday 6th December, Little Foxes Nursery are holding their Christmas Fayre and this year they’ve chosen to donate the money that they raise to the Myotubular Trust. The nursery is attended by Connor who can be seen here on the right with his big brother, Reece, who has myotubular myopathy. We hope that you all have great fun on the 6th and look forward to hearing all about it soon.

Georgina Fowler,currently a third year BA (Hons) contemporary applied arts student at Hereford College of Arts, recently donated three of her distinctive vessels to the Myotubular Trust for an auction at The House of Commons, where they raised £500! If you would like to buy some beautiful vessels from this up-and-coming artist early in her career, pieces are individually priced from £25. More