Gus Carroll is entering not one, but two sporting events for the Myotubular Trust this year. He has been training hard for his first ever triathlon event, the Dorney Lake Evening Triathlon, which takes place on May 12th. And following that, Gus will be joining us on 11th July, at the British London 10K, for the fourth time. More

Thanks again to 'We Love Northcote Road' for supporting the Trust at the Christmas lights celebrations which took place on 3rd December. Local schools, businesses and shops once again came out in force bringing the Northcote Road community close together while raising funds for our charity. More

When bride-to-be, Charlotte, set out for her hen night she had no idea what her friends had in store for her. Fellow 'hen', Samantha Hartup, made a very special top for her friend Charlotte to wear - it was adorned with polo mints and for a donation of £1 males were invited to bite a polo off of the top whilst Charlotte was still in it!. More

On Sunday 21 st March, Marek Pruszewicz is taking part in the Reading Half Marathon in support of the Myotubular Trust. This will be Marek’s tenth appearance in this event however, for many years, Marek has run in support of another very worthy cause close to his heart and we are very grateful to him for choosing to run for the Trust instead this year. More

We would like to thank James Lee for so kindly taking the time to nominate the Myotubular Trust for a Lloyd’s Market Charity Award in 2009. The nomination resulted in an award of £1,000 being made to the Trust. More

We have been really moved by the people who have chosen to foresake presents this year when celebrating their special occasions, and instead ask for donations to our charity. Our heartfelt thanks go to Christine Anderson, Mona Beck, Richard Nightingale, Brenda Seville and Carol Seville who all celebrated very significant milestone birthdays in 2009. Thank you too to Mr & Mrs Grover who collected donations when they celebrated their Golden Wedding Anniversary earlier in the year. Our belated congratulations to each and every one of you, and we really appreciate the kind generosity of your friends and family too.

Why not take the pressure out of Christmas this year, and shop at some major High Street stores from the comfort of your home? By doing so you can raise money for research into the Myotubular Myopathies at buy.at. This clever online shopping facility has already raised a staggering £685.75 for research to find a cure or treatment for myotubular myopathy, and has the potential to raise so much more if we can all get into the habit of shopping this way! More

Brave Glen Dobson undertook the challenge of completing his first parachute jump in support of the Trust. Glen was inspired to raise research funds by his friend’s son, Reece, who has myotubular myopathy. Glen says "It was my first jump, which was filmed from start to finish. The whole event was made worthwhile just to see Reece's reaction when I mentioned his name during the filmed interview at the start". More

On Sunday 6th December, Little Foxes Nursery are holding their Christmas Fayre and this year they’ve chosen to donate the money that they raise to the Myotubular Trust. The nursery is attended by Connor who can be seen here on the right with his big brother, Reece, who has myotubular myopathy. We hope that you all have great fun on the 6th and look forward to hearing all about it soon.

Georgina Fowler,currently a third year BA (Hons) contemporary applied arts student at Hereford College of Arts, recently donated three of her distinctive vessels to the Myotubular Trust for an auction at The House of Commons, where they raised £500! If you would like to buy some beautiful vessels from this up-and-coming artist early in her career, pieces are individually priced from £25. More