Year 5 of the London Walk and we have now officially walked over 10,000 miles between us! |
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Click to see the full 2012 London Hope Walk album. |
The 2012 London Hope Walk was a beautiful day in so many ways - weather, and atmosphere and we would like to thank everyone who made it such a great day. Thanks for your extraordinary energy and commitment and the very obvious passion for helping us to fund research. It particularly meant a lot to those of us walking who have lost our sons to myotubular myopathy. The pictures speak for themselves - from our youngest, 8 year old Flynn Laban, to 68 year old birthday boy, Rodney (Sid!) May - everyone had a great day by the river and at the picnic in Wandsworth park at the end. Anne x |
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At this very special 5 year mark, a massive thank you to Lizzie Geffen whose inspired idea this event was, and to Jo Martin whose tireless organisation has made it such a consistent success. "It amazes me that after 5 years of organising this event that every year the atmosphere just gets better and better and I think I can honestly say I still don't get bored of the route. I wish I could thank every one of you personally." Jo
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Click here to see the 2011 photo album Click here to see the 2010 photo album
WHY?
The first ever Myotubular Trust 20 mile Thames Walk was arranged by three of our wonderful supporters, Lizzie, Jo and Laura, in 2008, as they really wanted to make a difference.
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‘We became involved when one of the girls in our NCT class, Anne Lennox, had a baby boy called Tom, born with Myotubular Myopathy. Sadly after bravely fighting the condition for almost 4 years Tom died in May 2007. It is great to think that we are doing something so positive to remember him by and to support other families with children with myotubular myopathy.’ Lizzie, Jo and Laura |
1. Map, 1 3. Directions 1 4. Directions 2
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The route follows the River Thames along the towpath from Hampton Court to the charming Wandsworth Park where walkers and their families gather for a leisurely picnic. Ever since, the walk has been a huge success. If you are interested in taking part or designing your own, or have any friends, relatives or colleagues who might be, please contact Melanie Spring on contact@myotubulartrust.org |
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