Family Conference Day, September 2007

A very successful first European conference for myotubular myopathy. The meeting was arranged as a scientific meeting in conjunction with a family conference day, helping the collaboration and dialogue between leading European researchers within the neuromuscular pathology arena. Families and individuals met to exchange experiences and learn about managing the condition. The family conference also provided a rare opportunity for the keynote researchers to meet affected patients.

Kindly hosted by V&A
Museum, London and
sponsored by