Family Stories - Joey

Family stories from the Myotubular Trust

If you are interested in buying my book,
you can order it from my web site. It is an autobiographical book of poetry and the
name of it is THROUGH MY EYES. I am always
willing to give speeches and write for a cause,
so if you ever need to reach me , you can
e-mail me at

Hi, my name is Joey Wells, I am 22 years old and I have myotubular myopathy.

I have done a lot in my life time, such as play tee ball, school plays, parades, attend public school, all of this was just as a child. When I was 16 years old I was forced to be trached. I tried to go back to high school but my body just wasn't ready yet, so I was forced to drop out. Later that year I went on to get my GED. Since then I have attended college and have a GPA of 3.25. Now-adays, I play power wheelchair soccer for the United States Power Soccer Association as a part of the Glendale Rough Riders. The 2008-2009 season was our first year of being formed. Despite our inexperience, we went on to show our hard work could pay off by hanging with every team at the regional tournament. We had a goal of gaining respect from all the teams and that is just what we did. I was honored with the MVP and sportsmanship award of the Western regional Tournament. I see the sportsmanship award as a team award, because even though we lost every game, we played hard and always congratulated the other teams. In our last and final tournament of the year, I injured my hip and was unable to try out for Team USA, which is a major goal of mine. This turned out to be a good thing because it has given me time to concentrate on working with people with disabilities as well as promoting my book.

From Texas, to North Dakota, to California, I have learned that through perseverance, you can accomplish anything you want. If you ever want to talk, you can reach me at

Through My Eyes can be bought through Joey's website