About the Myotubular Trust

People behind the Trust

 

Communications and Education Coordinator:

Melanie Spring

Melanie Spring has been with the Myotubular Trust since November 2008, and is the first point of contact for families, the medical community and researchers.

melaniespring@myotubulartrust.org

 

 

Our Scientific Advisors:

Our Founding Patron:

Professor Victor Dubowitz
Emeritus Professor of Paediatrics, Imperial College, London
President of World Muscle Society
Founding Editor of Neuromuscular Journal

Our Scientific Advisor:

Professor Francesco Muntoni
Professor of Paediatric Neurology, Imperial College, London
Head of Dubowitz Neuromuscular Centre, Institute of Child Health,
Great Ormond Street Hospital for Children, London

Professors Dubowitz and Muntoni are based at one of the largest Paediatric Neuromuscular Units in Europe which has been designated by the Dept of Health as a National Reference Centre in the UK for a series of congenital neuromuscular conditions.

The Trustees:

Mr Andrew Lennox
(chair)

Mr James Rosling (treasurer)

Mrs Anne Lennox
(parent trustee) 		Mrs Wendy Hughes
(parent trustee)

Our dedicated Trustees each provide their time and expertise on an entirely voluntary basis.
The Trustees would like to thank Mr Ian Hunter for his immense help and support during set up of the charity and three years to April 2009.