News

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January 2016MYOTUBULAR TRUST CELEBRATES 10 YEARSIn 2016 we celebrate 10 years of fundraising, family support and funding excellent research. Thank you to everyone who has made this possible.

November 2015BOURNEMOUTH MARATHON IN MEMORY OF WILLTwo longstanding supporters, Duncan Collins and Roberta Taylor, took part in the Bournemouth Marathon in memory of Will…
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November 2015NEWLYWEDS FOREGO WEDDING GIFTSCarlos and his bride, Cristina, asked friends and relatives to donate to the Myotubular Trust in support of Diego...
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Oct 2015MATTHEW INSPIRES THE BANKMyotubular Trust chosen by the Bank of England as their Chairty Of The Year
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Welcome

Myotubular Myopathy is a rare genetic muscle condition that affects mostly boys from birth. The condition causes profound muscle weakness and most dangerously affects the muscles that control breathing and swallowing. Eighty per cent of children die before their first birthday. One per cent make it to ten years old*. For the last 10 years, the Myotubular Trust has lead the way in both supporting families and investing in research to find a treatment and a cure.

Now, thanks to our supporters, scientists the Trust has funded are on the verge of a breakthrough that could lead to a treatment for not only myotubular and centronuclear myopathy but other rare muscle diseases too.

Join us in changing the lives of the children and families who are affected by this rare disease. A cure or treatment is no longer a pipe dream - but only you can make it a reality.

Read about Research funded by the Myotubular Trust Read family stories

*source: Orphanet Journal of Rare Diseases. Centronuclear (myotubular) myopathy"